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It’s Been ‘A Bit Of A Day’
So yes, I have been feeling increasingly like a bag of shit all week but I had only seen Ray this very Monday, and had a chest X-ray then. How much can go wrong in the two days been then coming back this morning? Quite a lot, so we have just learned… I felt like…
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Not Very Well..
I seem to have developed what feels awfully like a bad chest infection, on top of mY existing breathing issues, both of which combined mean I am struggling to get my breath. Which feels pretty scary as I sit gargling for air. So my Monday this week turned into a day I hadn't planned for.…
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Le Touquet Weekend Away
9 years ago it was that a certain Ian Hawkes filled up a space on the Puritans Men's Hockey tour to Le Touquet and was lucky enough to meet a then Clare 'Scotty' Scott, playing for the Puritans women's hockey team. …
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Seeing the Nanimals
Managed to survive a whole day out in town yesterday – while the company was lovely (Lyds & Fitz), my body was being particularly grumpy and just getting to the Natural History Museum to meet Lyds was a feat in itself. They might think shutting the front gates is clever idea, but when I am…
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And a gentle request
Not quite sure how to put this entirely gently but a little request from me. If you could just put yourself in my shoes (ha, if only I could get them on) before suggesting that I might either like to apply for a parking disabled Blue Badge or to get myself a granny mobility scooter,…
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Feeling ‘Different’ Sucks
I remember just how crap it was the last time I was on treatment to 'feel different' to everyone else. I've had many flashes of this in the last 2 months since all this medical crap really heated up again, and got a whopper of a dose yesterday evening and much of last night, for…
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the Lady and the Tramp
Janine brought the small black scrap of furball that is Flossy, around for a 'Scrumpy play date' this week – also known as Flossy leaping all over Scrumpy, commandeering her dog bed, chewing and dragging all slippers and trainers through the house and generally terrorising our 4-pawed creatures. That small hound sure packs a major puppy…
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The New Wheels
When did we get so old and tragic that we suddenly became a house with two BMWs??!… Answer: This week when the rather lovely new X1 came to live with us. And all because this battered and broken old git can…
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First dose of Carfilzomib…
Another classic Parkside lack of communication that drives you potty in what is, quite frankly, already a stressful enough day. Good job Mr H was with me, as we turned up at 10.30am and started upstairs in Ray's waiting room. Got sent straight down to the Chemo Lounge to have the canula put in, hate…
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The New Regime
Confused???! I am. Just been to see Prof – some of which was useful, i.e. straight answers to my questions (a rarity) and some of it a bit of a mind fuck. So here goes. The good bits: He agreed that I should contact the heart/lungs chap who is dealing with the pulmonary hypertension…