Uncategorized

  • Humpday Wednesday

    Morning lovely peeps Saw Prof yesterday and we compromised on having 2 Velcade injections (plus some steroids and the usual gibbons – hence I've been up since 3am and now have my lovely rouge 'steroid face' on) this week. Managed to dodge the Revlimid bullet in the end, so that's handy. Will start a 4…

    read more

  • Last Day Before It All Starts Again

    The calm before the (shit)storm……. Having been off treatment for a couple of weeks now I feel SO much better. Went to what we call the Secret Carpark in Richmond Park yesterday and managed the longest walk I have done in months, with H, our mate Jules and the dog beast. Probably about a mile,…

    read more

  • Thank God It’s Friday

    Hurrah, fast forward three days since leaving hospital and I feel much better. (Well, apart from Scrumpy practically ripping my left arm off as she shot out of Claire White's car footwell yesterday at the park…when will I ever learn that dog has the speed end power of a tiger when she spots grass? Bloody…

    read more

  • Wednesday

    Got out of Parkside yesterday, pretty freaked about the whole stay. Had a bad final night, nurse walked in to check me at 2am and was so loud I thought it was 6am and time to get up. My bedsheets were as usual soaking wet – because the mattresses are wipe down and the sheets…

    read more

  • The Monday Update

    Greetings campers Not a huge amount to report today apart from the all-important…. I'm Going Home Tomorrow. I carried on with all the antibiotics, nebulisers etc today – including a new toy called a Turbohaler – and don't envy the poor Pharmacy woman whose job is it is get her head round all the changes…

    read more

  • The Sunday Update

    Well hats off to Charlotte the lungs consultant who appeared this morning to review me as if Sunday was just another working day in the week – that is impressive dedication. And who then released me from HDU onto the third floor, so I am now residing in room 301, which is very spookily the…

    read more

  • The Saturday Update

    Things are heading in the right direction, a bit of a way to go still but definitely a step up today. Well, apart from feeling pretty sick half the day and coughing my little socks off for hours on end – that bit I could certainly do without. Main news is that tomorrow I can…

    read more

  • The Friday Update

    Well, things today are a good few steps up from yesterday so that's a good start. Temperature has come back down via the IV drug bombardment, although I have come out with a splendid case of cherry red face and cleavage probably due to taking yesterday morning's steroids before the planned chemo session – so…

    read more

  • It’s Been ‘A Bit Of A Day’

    So yes, I have been feeling increasingly like a bag of shit all week but I had only seen Ray this very Monday, and had a chest X-ray then. How much can go wrong in the two days been then coming back this morning? Quite a lot, so we have just learned… I felt like…

    read more

  • Not Very Well..

    I seem to have developed what feels awfully like a bad chest infection, on top of mY existing breathing issues, both of which combined mean I am struggling to get my breath. Which feels pretty scary as I sit gargling for air. So my Monday this week turned into a day I hadn't planned for.…

    read more