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No turning back now…
Correct leg has been marked – always a good start – surgeon has been in and he should be heading down in the next hour or two. Vistitors so far – thank you for offering to pop in. He will be in Room 105 on the first floor, near the nurses station. Good times to…
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Elotuzumab – day 1 today
In a nutshell, I got here at 10am. Had bloods, blood pressure, height, weight, temp, peed in a pot. Saw Prof 11am, got extra diuretic prescribed as my feet swelled up like buggery from all the walking in Rome this weekend (proper revue of that when I've downloaded photos). Have got my cankles back and…
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Anyone for a 4.45am taxi?!
Yep, it's gonna be an ugly start to the day – taxi at 4.45am gnat's crack to Gatwick and the pleasure of a Sleazyjet flight awaits us…. But we are going to Rome! Mr H can finally stop banging on about wanting to go there as its actually going to happen. We have an Airbnb…
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Cooty Weekend in the Sun
How long have we all waited for this weekend – THE SUN WAS OUT!!!!!! Just so good to feel well and be at one of my favourite places – J&R's cottage. First time to sit out and have dinner a la fire pit in the garden, right till my eyelids started dropping at 10pm and…
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Meeting Luna the Sprocker
Very nice walk and nattering catch up on the Common today with Lucy Richardson and their newly acquired Sprocker, the appropriately named Luna. Very small, so much so she wasn't allowed to actually walk on the grass as she hasn't had all hr jabs yet and when we did briefly try her, she seemed keener…
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First Firepit of the Year
Hurrah – finally warm enough to venture out in the wild outdoors to eat dinner. Great role swap in our house – Mr H as usual busy in the kitchen…
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More Prof detail
Can't believe I forgot to add this bit as its pretty critical to the next few months – and as usual is a total bloody mindfuck. Number One fact – Ray said that he has probably seen more Myelk a patients in his career than probably anybody. Given that, he finds it extraordinary that he…
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Back on Revlimid
What a surprise – the new US drug still isn't here so it's back into the combo of Velcade jabs and Revlimid capsules for the next 7 days. Then I will see Ray next Tues and see if the picture's changed and if the new drug is here. I'm guessing it won't be, judging by…
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Sevenoaks Vets Hockey Tour
I seem to have woken up today just as sore and battered as if I had actually played hockey on pitch with the girls over the three day weekend – ow! Apparently my 'movement stamina' is very low – so even jigging like an old bag on the dance floor and lifting my pint of…
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Touches of Blessed ‘Normality’
On the one hand, it's a very frustrating month now, having been forced to take a break in treatment due to the emergency hospital admission for breathing issues and the wait for the new chemo jab that is still no-show as yet from the US. On the other hand, the break has meant I've felt…