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AV Girls Night Out
Well, this is out of chronological order as last week was 'a bit of a week' as they say – but I didn't want to let it pass without saying what a cracking evening it was. Somehow 11 of 'the old gang' were herded together into B@1 in Clapham to get the wheels oiled nicely…
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Birthday Balls Up
Send the moral of the story is…. Never book things in a bit of a rush or when you're running out of options by the minute. But then again, you could also call the lesson of the day 'sods bloody law that if one Airbnb booking is going to go badly wrong, it would just…
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Treatment Timings
And hot on the heels of 'cycle 2 was crap' comes my next rather annoyed entry 'how goddamn long do I have to be on treatment for – the entire sodding summer and beyond?' Trying to get a handle on what on earth will be happening to me, month by month, let alone week by week,…
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Disappointing Cycle 2
Phlurrrggggghhhhhhh Got my Paraprotein 'score' back from Linda yesterday – having dropped rather well from 6.1 to 3.18 during Cycle 1, it has now only dropped from 3.18 to 3.1 during Cycle 2. That, I think we can all sadly say, is a crap result. Came with an optimistic note from Linda saying 'it's nearly…
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Cottage weekend
Had a very lovely weekend st the cottage while and H is away with 'the boys' in Morzine, skiing. Mostly playing with Janine & Ross's gorgeous new addition, Flossy. She of sharp teeth, wild black fur and the ability to gambol more like an excited lamb than a dog. …
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Brighton and Coot photos
OK – ignore the gigantic Scotty moonface – here's a couple of shots of me and the hubster on the beach, scoffing the fruits de mer and tucked up at the coot in the back room with the fire and a G&T… Lyds – look carefully and you will spot your very kind NY-purchased Twisted…
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A Day Away and Today
Mr H had the very good idea of making the most of the two days in between chemo sessions this week, so off we tootled on Tuesday down to Janine and Ross's cottage for a couple of nights. They were very, very busy in London, introducing their new scrap of super cute Flossy the Labradoodle…
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Diary extract…
I've been keeping a daily 'diary' since all this started again, for various reasons: – mostly, do I can see if patterns emerge within the treatment cycle, eg 'Feel a bit dick on Velcade days', 'never make plans for the second Sunday when you fall off the steroid cliff' – partly as, with time (here's…
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A tough weekend
I feel like shit. Total, utter, abjectly miserable shit. Just to set the context, in case it doesn't leap off the page as you read this cheery pile of old cobblers. My skin hurts. It feels like someone has injected a thick layer of poison right under it, such that even a pat on the…
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The Latest 48 Hours
So much sums to happen in such a short space of time in this weird old medical world that I traipse hopelessly and haplessly round. So – things to report are: Firstly, I had the right heart catheterisation yesterday. A pain in the neck in every sense of the word! Most notable features were that…