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Day 3 – Fri
Hello campers, thanks for tuning in… Now have to be weighed twice a day as fluid balance and lack of eating have to be measured closely, and Prof has insanely chosen 6am and 6pm for this dubious pleasure. Bloody crazy that if I finally drop off in the late early hours, someone will wake me…
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Day 2 – Thursday
Terrible first night. Dozed off around 10pm, always massively disappointing to wake up and find its 11.10pm and it's still the same day.. Couldn't get the bloody bed to go fully flat, so tried sleeping leaning uphill but failed. Two hopeless night staff had no idea how to remedy it, so ended up chucking pillows…
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Day 1 – Wed
Well, here I am – officially in the Dark Side. Not a great start – was shown to a small room despite having supposedly 'booked' one of the bigger ones, as I am in for such a long stay. Room is minute, furniture shabby, have to move the chair to even get at the cupboard…
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30 hours to go..
Its taken me the best part of 3 hours to finally get up this morning, mostly as I couldn't face mixing up yet more paracetamol to ease my way out of bed. And I am now in the kitchen with just my slippers on my feet as socks were a step too far today. Had…
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Visiting Scotty
Having a stem cell transplant is a messy thing. It's not like going in to visit someone with a broken leg, who will more or less be in the same condition every day, as chatty and up for visitors as they always are. I don't yet know how ill I will be while my immune…
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Thank You
To everyone, over these last 2 years particularly when things have been tough and my health has deteriorated for a second time. For popping round and having teaFor texting and asking how things are goingFor calling 'just for chat' and perking me upFor cooking and feeding usFor taking us in when our builders drove us…
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Great…
… Just managed to cry in the dentist's. Not quite what I wanted to happen but she was being so nice and sympathetic that I went all path-etic in response. Quite hard keeping your mouth open when you're snuffling a bit. And they managed to cock up the appointments 'oh yes, i remember speaking to…
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Twixmas and NY
Wow, only 2 weeks behind schedule – a few shots of Twixmas in our AirBnB and NY Eve at the coot. And if you're wondering, the chap on the left of the bathers' photo is Janine's older brother, Tim, whose birthday is on 31 Dec and who, for some mad reason, likes to go sea…
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A Hard Day’s Night
So frustrated. Yet again gone up to bed, had a relaxing bath, turned the light out after 10pm and woken up at a ridiculous hour, this time only 12.50pm. Decide to go for a wee as annoyingly wide awake. Turn parts of body slowly and one at a time (hips, shoulders, knees, neck, head, repeat)…
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Transplant terrors
And so it begins – am already waking up at night multiple times and having panicky moments in the day as am shitting myself about going in for my SCT on the 18th. It's all very well for Linda, Prof's right hand woman, to say 'yes come to be consented at 1.30pm on the Wed,…