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  • Frustrating (and other F words) Friday

    Busy night, waking up at midnight, 1am then 3.20am when I finally decided to have some milk, squash and get today's diary underway as sleep is a touch elusive. Back is very, very painful if I move into the wrong position so am debating how best to handle this with Prof. If he's making positive…

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  • Groundhog Thursday

    Woke up in room 302 at 6am, and was plugged into bag 1 of the day by 6.30am. So at least I was tootling my way homewards by 8am, with my new friend, acid reflux, rather annoyingly yanking my chain quite a few time. Georgie Headley popped round for morning tea – and as an…

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  • Wobbly Wednesday

    Well there were good and less good things about today. Managed to get my tush up to the Dark Side by 6.50am, so early in fact that I had to ask the car park man to open the barrier. On the good side, the drugs were ready and I was plugged in fast. Drank the…

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  • Turnaround Tuesday?

    Made it downstairs at a time that I now consider to be 'early', 9am, so I could have some milk before H drove me up to CCL. Place your bets now on how many times the word 'mouthwash' is chucked at me today…  Pretty bad start as back went into contraction-like spasms, air-hissingly painful, could…

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  • Another Monday

    Day 12 of waking up – at 3am, thirsty – with my mouth exactly the same. Lips glued together by combo of dead skin and mucus, delightful. Guess we won't be having a romantic dinner for 2 at home tomorrow night then. Am already a bit nervous about going to CCL tomorrow in case Prof…

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  • Sunday 12 Feb

    So Mr H gets back from the dinner party at 1.30am, and pops up to tell me about it. After ten mins, I can smell him so strongly that I sit up and start to retch. Poor, poor man, it's not exactly the 'welcome home' from your wife that anyone would want. Can't believe I…

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  • Saturday

    Up part of night, peeing out the lake of fluid that's been dripped in over the last 48 hours. Every sit on the loo is punctuated by me picking more and more of the dry chapped skin off my hands and rubbing the flakes off my arms and legs – I am a true delight.…

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  • She’s Out Again…

    Awake by 5.45am, thirsty. Drinking is still a very slow, concentrated affair but at least liquid is going in. That'll hopefully keep me out of here (she says, holding her IV out of the with right hand, so left hand can type..) Only another 8 hours on this bugger to go… Dozed on and off…

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  • Thursday already?

    Doesn't time fly when you're having fun… or are tethered to a bed and can't escape… Quiet eve last night apart from the endless clicking of the IV which they insisted ran all bloody night. Pain in the arse being attached to the bed with the alarm going off every time I bent my elbow,…

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  • Wednesday so far, not so good

    Wobbled my way with H to see Prof this morning. Immediately sent to the bedroom off the chemo suite at CCL to have a litre of fluid dripped in as am unsurprisingly very dehydrated. Doc came to talk about mouth treatment options – just hearing her and H discussing mouthwash made me sit bolt up…

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