Here we go, Day 7. Bit of a rubbish night, tossing and turning on the crappy hospital bed. Impossible to get comfy on something that is made of rubber, and built for wipe-ability. It makes our bed at home feel a veeeeeery long way away..
Woken for blood pressure at 3am, crept to the loo at 4am. It took me a whole hour to summon the energy and effort required to go 3 yards, good grief. By 5.12am, had checked the news and smiled at the 'can we be the second best country' Trump video on Dutch TV.
Feel wiped out. Neutrophils apparently still hanging in there, as is most of my mouth, if you ignore the slab of yellow on my tongue, the lack of taste buds and my present apathy about food.
Perked by a very good stream of visitors. Claire White with a mini Flake that I've actually managed to eat. Then Mr H and J, bearing strawberry fizzy laces, to try and scratch some of the fur off my tongue. Then Brandon, my 'myeloma chum' who'd had his Dara chemo over at CCL today, and bless him popped round after for a chat, with some of those protein Bounce balls.
Followed swiftly by Vicki and Hatch – Vicki with a stash of A4 prints of Scotty photos, for me to 'wallpaper' the room with. Some absolute corkers in there, a right old trip down memory lane, very nice idea.
In between, lots of kipping for me. Ate just five small forkfuls of dinner, so the serving lady again brought me a melon plate. It's not my fave fruit but very sweet of her. And a visit from the pain consultant, offering to stick a needle under my skin into which he can pour additional anti nausea stuff, as I feel medium pukey all the time. Not so keen on this one for now, as it means having a constant needle buried in my side, but it might be a good idea if I lose the ability to swallow the drugs.
Now 7.45pm, been a slightly better day. Neutrophils are still at 8 so that's quite good. Prof said that while the chemo will have killed all the old ones, these are still dying off more slowly than is the case for some people. In the meantime, I am already growing more, so hopefully the period when I have very few/none will be shorter than it can be sometimes. A small bonus but worth having.
Night campers x