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Schmyeloma Update
Thought an update would be good, as I finally managed to pin down the very nice Reuben Benjamin from Kings on a Zoom call last night. The nutshell version is that he doesn't think I need to change treatment immediately, providing three things fall into place: I have the test for amyloidosis at the Royal…
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A Grumpy Week
I might as well say out upfront – if you were looking for an update, there is absolutely nothing new to report re what happens next. Nothing. Nada. Diddly squat etc. All of which is making me incredibly antsy! I don't remember having a week quite like this. I don't seem to be able to…
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Here we go again…
So… It seems my good luck has again run out unfortunately. My 6 monthly bone marrow biopsy that I had in early Jan apparently contains some active myeloma cells, not in the liquid itself but in the trephine (bone sample) that they also take. Which some places don’t even test – but CCL does. There…
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Saying Goodbye to Swighty
The 15th of January was always going to be a tough day. It was Swight's funeral, our fab hockey friend who died a week before Christmas from, yep, bloody bastarding cancer. But what an amazing turn out there was for her – and…
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Keeping Parkside & CCL Busy..
Blimey, it's been a busy old start to the year in terms of hospital appointments. What a joy! In the last 9 days I have had: Chemo & immunotherapy, plus the first appointment of the year with Prof & Linda A PET CT scan (every 6 months, part of more detailed checks on the stage…
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New Year and we’re into Jan..
Unusually for us, H & I stayed in London for Twixmas this year. Partly so we could have our mini Christmas a deux still, this time on Boxing Day. And also as it gave H the perfect opportunity to book a fancy lunch at his favourite restaurant, Scott's. …
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The Rest of Christmas 2023
We are so appreciative of a really good Christmas, in relatively good health and both together, especially in the wake of Swight's sad passing. And what a whirlwind it has been.. My much loved uni friend Mark came by to drop off Lottie the Ginger Ninja, and have a rye bread & home made gravadlax…
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Terribly Sad News
On Sunday I got the phone call that no-one ever wants got receive. Our very much loved friend, Swighty, had died. Swight, real name Sarah Wight, but always Swight, was diagnosed with cancer – god, I'm not entirely sure when she first heard, but it was well over a year ago. Last Christmas I remember…
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The Two weeks to Christmas..
The build up Santa coming started with a trip to the lights at Kew Gardens with J&R. None of us had been before at it got off to a good start with, of course, a fortifying giant sausage in a bap to warm our cockles as we trotted round the 2.5km route in the chilly…