Prof Update

Saw Prof yesterday and came out of it feeling better than I expected. He's warned me before Xmas that we needed to decide re an additional course of treatment for me, which of course is about as welcome as a hot poker in the eyeballs..

But, its not as bad as it could be. Or so I think right now.

He wants to add in Velcade, as in Myeloma combinations of drugs seem to have much better impact that single drugs alone. So I will continue with the monthly Daratumumab, my old mucker 'Dara' to it's longterm friends.

But now also have to have 3 Velcade injections a month. Which means one on the same day as the Dara then the other 2 on some weird combination of days following that, which makes it quite complicated. 

Day 1 is Dara day – then you have the other injections on 2 out of the following days of the cycle – day 4, 8 and 11. Why on earth that can make any sense I don't know. Surely having them on days 4 and 8 in 1 month, then on days 8 and 11 the next month if those days suit your diary best, is about as random as just saying 'well I'm free next Tuesday and the following Thursday, so how about then?'

Will have to suck it and see. It sounds easy but still means going to Parkside, having a blood test, waiting for the results, someone signs off the injection, pharmacy go make it, it gets delivered and finally jabbed into me. Oh, and its back to having a bruised stomach as the jabs are dirty little buggers. But – its meant to have remarkable success compared to Dara alone, so no choice there then. And its a lot better than boiling bloody Revlimid capsules every night which is the much crappier alternative.

One light on the horizon was Linda then saying 'there's a new drug called Ixa coming, maybe in June' which is only 3 tablets a month (yes please!!) which would be much easier. So hopefully by the end of the year I'll be off Velcade and swigging the tabs down instead, much less intrusive into life.

We will see. Jabs start after our Spain trip, so nothing till late Feb, hurrah x