Feels like rather a long week, this one. I had my 6 monthly bone marrow biopsy on Monday – the usual Parkside faff of 'come at this time', 'oh that's the same time as you're actually booked into theatre', 'come three hours earlier', 'no, that's way too early', 'make sure you don't eat for 6 hours beforehand, although we're not entirely sure what time it needs to be before..' etc etc. Sigh.
H was away cycling the South Downs Way, as he does, so I carted some work in with me and hung out in the 'you can hear every word being said Day Unit, for the afternoon. I just love it when they ask each time on the follow up questionnaire ' Did you feel you had enough privacy?' – oh yes, if you get off on listening to people's medical matters, oddly loud phone calls, requests for sandwiches and oh so funny jokes with the nursing staff… LMAO.
The procedure went fine and actually wasn't particularly sore afterwards, so I decided to try out the walking hockey match on the Tuesday morning despite the nurse saying no exercise for a few days. Exhausting but no major issue with the small hole in my back and sore bones.
And am now sitting here, 3 days later, wondering when I'll get the results. Not yet been asked to go for the PET CT scan that the BMB always goes hand in hand with – maybe that team is working to the proper six month timings, as rather annoyingly I got dragged in 3 weeks early for the BMB. Wasn't hugely amused when I'd not eaten since 10am and had been sat there since 2pm, when at 5pm the Doc asked me if I'd like to postpone it to another day as it wasn't the full 6 months, arrgggh!
And H is having some important scans this week too, basically to see how effective all his chemo, radiotherapy and hormone therapy has been over the last 3 years. Can you believe that 3 years have somehow shot by since he was diagnosed? Blink and you'll miss it… The scan & update wasn't due till December but having it hanging over our heads isn't the greatest way to spend winter or the run up to Xmas, and his consultant said it would be fine to bring it forward.
So next Wed eve is pretty much make or break night, at least it feels like that. We have literally no idea what a good scenario, average scenario or bad scenario look like (though we can vaguely guess..) and equally no idea what treatment pathways there may or may not be depending on the outcome. Nor even whether it will be a clear picture with a definite path to follow, or another fudge sludgy mess to try and wade our way through. H feels well (apart from the bug he picked up while cycling, he is actually grey today), so both very much hoping that he may somehow have managed to buck the odds and that things will be better than they could be.
No point wondering too much as you can spend all day going through increasingly shitty 'what if' scenarios in your head, so am trying to keep busy with a bit of birthday stuff (great timing, not!) and a hefty dose of that old trusty favourite, the keeping your fingers crossed approach.
God knows, we could do with a bit of luck on our side, so here's to hopefully some good or at least decent results for us both, and the ability to head towards 2022 with some more precious time in the bank x