It's been a bit of a worrying wait since my January bone marrow biopsy showed 5% of active myeloma cells in the trephine, the first presence of any of the bad stuff for 9 years. And the long wait has entirely been down to me trying to shunt the next tests to after the various spring/summer trips, so nothing could be disrupted unnecessarily.
And phew – it's good news. This PET CT scan was still clear, as it was in January.
Weirdly, the trephine (bony bit)n that they assess in the bone marrow biopsy, and which had the 5% of active cells in January is now showing zero active cells. In contrast, the fluid – that was clear in Jan – is showing some presence of myeloma cells, but it's very low at 0.007%. I am indeed now 007… and confused but going with it!
So, probably no change in treatment plan for now, though I'll next see Ray in 3 weeks and get his view on this. Just what I was hoping for, as the current treatment plan works well for me, both in terms of minimal side effects and flexibility in how it is administered. (I'm sitting at CCL now, able to ring them and say I would be 30 mins later than planned as BBC was finally showing the Men's Hockey vs France, which I wanted to see and which we duly won!)
So – all good in the hood for now. No idea how long this will last but for now, I'll bank it and here's to a good rest of the summer x