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Dara Dose 3
Well, this is fast becoming my fun packed Tuesday routine – sitting at CCL having a canula rammed into my right wrist, then pre-meds, followed by a fruit juice to wash down the oversized paracetamol then large doses of Daratumumab in its grim reaper black cover pumped into my system. It’s almost sociable today –…
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Afternoon at the the cricket..
No – not Lords or anything, instead an afternoon with Hatch at the very posh Cranleigh School, having a long overdue catch up while pretending to watch Jack play cricket for his Surrey practice team. Well, actually I managed to watch every single second avidly of his innings – as the poor lad was out…
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Mr Whippy Envy
Had a v nice walk with Mikey, Margo and young Patrick on Wandsworth Common yesterday – avoiding Wimbledon like the plague given the bike race trailing through it. Scrumpy – just for a change – managed to cut her paw in some filthy lake but seemed oblivious to the blood dripping off her back foot,…
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Up the Dome
Yep – just managed to redeem my very nice birthday present (Oct 2016!) from Vicki, Sophie & Nicky on Friday night – a climb up the Dome / O2. Approached with some trepidation given my breathing issues – and of course had to do the usual 'who me, no, nothing wrong with me' answer when…
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Nieces Night out
For the first time ever, Mr H & I had a night out with Scott nieces numbers 2&3 (of the 5) – Grace – the blonde one – and Abbie – the darker, youngest one. Jess (No1) was on a plane to Barcelona with her new fiance, or we'd have snaffled all three of Rick's…
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Dishing the Dirt on Dara Day 1
It's been a long day – and it's not over yet…but has also been pretty much ok and better than expected. Tipped up 9am – usual litany of weigh in, blood pressure, temperature check, ECG, checking what meds I'm on (despite nearly all of them coming from here in the first place), sorting the finances,…
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Cottage weekend
Am down at the coot in West Sussex. My favourite roast lamb awaits tonight, and it's steak a la Hawksey tomorrow. Finally the two dogs have stopped biting each others heads and devouring gnarly chunks of tasty garden wood. Both asleep, which is more than they were when we were trying to snatch a sneaky…
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A packaging triumph
this'll make you laugh – check out this photo of my latest delivery of Sildenafil, the drug I take for my dodgy lungs. This is enough for a month or so – crazily each ridiculously small pack contains less than I need for 3 days, so each lot that gets prescribed is enough to clog…
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How on earth do you choose?
Just back from seeing Prof and am still reeling at the latest. He is very keen for me to move onto yet another drug – Daratumumab – to see if this can bring my PP down to zero, and remission. So – asked the obvious question about how long I would need to be on…
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Rug Pulled From Under Feet
Fuck. I didn't see this one coming. I've spent the past five months dutifully having chemo. Turning up on time, week in week out. Biting the bullet with endless cannula insertions. Smiling gratefully at the pharmacy staff as they hand over piles of tablets I don’t want to take, but do. Being covered in bruises.…