Well, it's been fun, fun, fun these past 4-5 months, going from pillar to post from the rheumatologist to the cardiologist (number one) to the wrist surgeon to the oncologist to the lung man (first one, then another with a bike) and possibly to various other people who just didn't leave enough impression on me or my diary to make it onto this sorry list.
And today – was a big day – as I FINALLY got to go see the micro vascular expert at St George's – although was almost scuppered by clocking this on arrival:
You could;t make it up – everyone evacuated from the wing I needed to get into, for a fire alarm. Which turned out to be a lamp that had exploded in a research lab – and made me 45 mins late for my appointment.
But did get to see Prof Kaski and in a nutshell the story is:
- Yes, he agrees it is micro vascular dysfunction
– This is exacerbated by the arthritis/inflammatory condition and my dubious medical history
– He has prescribed a much higher level of the same drug Diltiazem than the first cardiologist did – suggests we hit it harder
– Plus has given me some jolly good sounding body patches to apply on 'busy' days when need I need my heart to work harder and also a mouth spray for attacks
– Two more tests to come – both sound fine – and then see him again in Jan. - So – a relief to have seen an expert and to have some stuff coming my way that will hopefully treat this damn thing so I can get back to a more normal life again. Always with the caveat that 'this is only one of several treatments that we can try / it won't work overnight, it may be months / you have to be patient / don't try and do too much as you won;t be able to etc etc'.
- Still feel better to have had a good conversation and to add a pile more crap to my ever-growing mountain of tablets.
- Weekly pill box now ordered from Amazon – feel like a right granny x
Comments
2 responses
Ugh – St George’s. The saint of exposed wires dangling from its lift socket light for months on end. I remember it well. Anyway, good luck with the pill-popping, spray and patches. Hopefully that’ll kick the nasties into touch. Big Sis x
Might I suggest, that instead of a depressingly Grannified pillbox, you re-appropriate your Ginvent Advent Calendar as an uber-cool (and far more cheerful) pillbox?
Unless you’ve been chucking out the bottles as you went along? in which case, let me know and I’ll fashion you one out of James’ or mine. I’m sure I main lined enough Blue Peter as a child to be able to knock up something funky AND functional.
Go on, it would be such a bad ass way to pop your pills xxx