Spent Wed & Thurs this week mostly at the Royal Free hospital, doing a whole barrage of tests to see if I had amyloidosis to add to the joys of myeloma. ECG and Echo, several scans, a walking test, whole body scan (including fat count, cheers for that), radioactive injection and final scan before getting the news.
Thank god – I don't have amyloidosis. So while my bone marrow biopsy showed some deposits of amyloid, it doesn't count as full blown disease. Bloody marvellous.
Almost as exciting was – that I swallowed my first ever capsules!! They can't do the radioactive scan unless you take – I think it was potassium iodide? – as this disperses the radioactive stuff. If you don't take it, the scan shows a big black splurge around your thyroid as it all gravitates there. Anyway – they got me 2 nice M&S yogurts, with fruit to disguise the capsule and I SWALLOWED it. And several of its friends over the next 2 days, as you have to take 6 in total. In the past I have even had to have different courses of chemo than the recommended ones due to my inability to swallow capsules, which certain chemo comes as.
So who knows, maybe it's the start of a whole new world?? As I stand her trying to bite a huge antibiotic tablet into 4 pieces, because I had to say no to the doc's recommended course of capsules for my never-ending cough, maybe next time it might even be a yes…
On both counts – whoop whoop!!! x