Hey guys,
Realised it's been while since I updated on the joyous state of our mutual health – always such a happy story, if only..
So firstly, Mr H:
- Has now finished his rather gruelling 39 radiotherapy sessions, after his summer of chemo.
- He's pretty tired and wiped out, which is exactly what the doc said would happen for a few weeks afterwards, so he's doing a bit of work from home but also trying to give himself the time and space to recover
- He is still managing some evenings out, so it's not all doom & gloom, wine definitely seems to be a pick me (well, him) up..
- Next important thing is on Dec 11th when we get the results of his first post-treatment blood test – rather than scans they will use this to measure his PSA score (the one we want to be very low, and to stay there). Hopefully it will remain stable – it's currently less than 1, which is great, but we will see..
- This will be repeated 6 weeks later, and the start of a pattern then emerges, which they'll use to determine what, if anything, happens next.
And now me:
- Amazingly, I'm still in remission, which is a HUGE relief obviously, although I still get nervous every month when I see Prof on my main Dara chemo day and hear the latest. Next one is Tues next week.
- My back however, remains a right unstable pain in the arse, almost literally. Fine when lying down (any excuse to get on the sofa) and as long as I move forward without turning or twisting or doing anything silly like jumping over a puddle, then so far, its been sort of ok since it last went into big spasms in April and June this year. Annoyingly, it is curtailing stuff that would have been great (we've cancelled the caving bit of our NZ tour as I am kidding myself if I think I can do a spot of canyoning, leaping into underground pools, several hundred metres into the earth, poo) but is so far liveable with, till it decides to spasm again. My ready-to-go drugs drawer is looking impressive though.
- My right foot has become more problematic this year – going beyond the plantar fasciitis that I had and that most people also seem to, I seem to have grown not just one heel spur but a whole row, like one side of a Xmas tree. I do always like to over-perform. Myeloma probably causing this, as it does like to fuck up your bones.
- Similarly when at the physio yesterday, I was told my tight calf muscles that run into my achilles (where the acute pain is), was 'one of the worst I've ever seen' – Scotty triumphs again!
- So I'm now trying to stretch them on the stairs and up against the wall and will have several more physio sessions before we go to NZ in the hope that I get a bit more mobile before we do things like the heli-hike on a glacier day. Hmm, that will be 'interesting'!!
So we're basically plodding on, keeping Parkside busy and trying to live as much of a normal life in between.
Keep your fingers crossed for ongoing well-behaved, low scoring blood for both of us as we head towards 2020..
Cheers all x