Having had the first of my '3 whole months till I have to go there again' highly pleasurable gaps between appointments, I did finally have to bite the bullet and tip up with Mr H at Parkside yesterday for my joyous appointment with Prof.
And actually, it was one of the better ones – I asked a couple of questions and he actually answered them, now there's a thing.
And as he was 45 minutes late in coming into his office, I also tok the opportunity to have a very enlightening read through my file. Which as you can see from the photo is now ridiculously large. I guess they assume you'll be 'no longer requirng their services' after a few years with Myeloma, so any longer term lingerers like me cause quite a problem with the archaic 'shove another piece of paper into the tatty folder' system.
Strange anachronisms lurked within its paperly walls, ranging from:
– Reading back my last 5 years all in one go. The highs (ok, none of those) and the lows 'Scotty is desperately upset still about her illness' (well, no shit, Sherlock), where he chronicles my emotional state as much as my physical one. Never realised the tears were making it into print…
– Remembering some of the physical crapola that I've mentally put behind me – from the many chest infections to bust ribs and my cracked coccyx (how do you spell that? or crack it in the first place??!)
– But most amusingly, seeing our holiday history laid out in each report: 'Scotty is just back from Dubai, where she watched Ian umpire rugby', to 'Scotty is planning to go to Mauritius' to 'Scotty got engaged in Mauritius' – its a bit like having a benevolent old uncle who charts your progress, just with more needles and less of a potential inheritance..
Or maybe it's because you can never say that much about the disease itself as it's so unpredicatble and when they have results they don't really know what these imply.. Still, it was a nice reminde rof some very good trips at least.
Anyway - Prof / Ray was so involved in dictating his thoughts that I got bored and took a photo of him to bring him to life. Here, dear readers, is Prof in what I don;t think he liked me calling his 'ice cream man coat'. x
PS No results as yet – hopefully tomorrow
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that’s a cracking sized file – did you resist the urge to re-order it in a more sensible way and add notes of your own?
hang on, who am I kidding?!