I've been keeping a daily 'diary' since all this started again, for various reasons:
\n– mostly, do I can see if patterns emerge within the treatment cycle, eg 'Feel a bit dick on Velcade days', 'never make plans for the second Sunday when you fall off the steroid cliff'
\n– partly as, with time (here's hoping) so I can capture physical improvements over time eg 'can now sleep on shoulder – first time in months (hmm, not had a lot to stick in that column yet, but as I said, the hope is lurking)
\n– and a bit for try and show myself that I'm still getting some kind of 'life' while all this is goung on, even if it's just a nice cup of tea and chat one day, or the chance to watch Aces win on a Saturday..
\nSo here's a sample one – the medical bit, the social bit, the home bit… All being posted at 2.45am as – yes – them little steroid suckers have totally taken the piss tonight. I've dutifully lain down with eyes shut since midnight to no avail and have now given up on tonight's shut eye – hence getting in TypePad now. There is one good thing – hats off to John Nurse who has finally got me set up on iPad mini so I don't need main laptop to write stuff. Only taken 7 years, hey!
\n– Up 6am, managed to get to St Anthonys to see Prof Brendan Madden for my right heart catheterisation follow up at 8.45am. Total waste of time, said again that it 1-3 months for the new pulmonary hypertension tablets to work, which it does for 4 out of people. Cried a bit in desperation that I am not the one ego gets to Julynto discover I still can't walk and breath any more easily..
\n– Drove back to Wim and picked up immensely kind Fitz who had skipped work at the last moment to be my chemo chum. What a total star.
\n– Got to PS, had bloods and then took dog for a 'wang' (continual throwing of ball from her beloved grey and orange lobbing device) on the Common. This fills the time between bloods going off and being 'approved' for chemo by the lab.
\n– My walking felt slightly (I think?) improved although lower back pain is as miserably griping as usual.
\n– Upper torso is also generally less painful – just like first time when treatment improved the rib pain – although it's not gone yet.
\n– Would love to know if shoulders are better but still can't walk far enough to trigger them, and at night I can't sleep on my side yet, so they remain a mystery.
\n– but, at least some things are poking up a tad and H has noticed a difference too, do in the world of small mercies, we are banking these
\n– Back to the amusingly named 'Chemo Lounge' for my Velcade sub-cut jab then an infinitely more enjoyable tuna sarnie in the Telegraph Pub with the Fitzer
\n– Just managed to visit the Post Office, Waitrose and to collect extra lung tabs from the pharmacy, then energy levels were well and truly gone and crashed out on sofa.
\n– oh dear, I ate a three pack of Toffee Crisps in a row. Yes, they may be smaller than they used to be, but bad, bad, Scotty….
\n– Much more optimistic mood overall today, plus able to do so much more (even if it's picking up my sisters deliveries, hmm Cathy!) with steroids on board.
\n– scoffed the final portion of Pam G's delicious chicken casserole that she dropped over last week. The one healthy (and spicy,yum) counter balance to the sugar mountain that I am steadily devouring.. Well done LaLa, just as spanking on round two of noshing.
\n– Watched tv with H, ordered him a final birthday present online as he will be 51 on Easter Saturday (do, do, pleased we did his 50th in style lady year as this birthday is going to be more damp squib than underwater play-paradise)
\n– I then watched I-player till midnight in spare room. Maybe dropped off a few times from midnight but gave up 2.30am, posted this and watched more tv…. Which programme to choose now? Mary Berry's Bake Sport Relief was good a couple of weeks back, I've finished the Icelandic series Trapped, didn't enjoy the 45 mins of domestic violence documentary that I tried earlier… Will forage on in and hope something decent emerges.
\nHope you lucky lot are all snoring like contented piggies in your
\nNight night X X X<\/p>\n","protected":false},"excerpt":{"rendered":"
I've been keeping a daily 'diary' since all this started again, for various reasons: – mostly, do I can see if patterns emerge within the treatment cycle, eg 'Feel a bit dick on Velcade days', 'never make plans for the second Sunday when you fall off the steroid cliff' – partly as, with time (here's […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"nf_dc_page":"","om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-869","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"\n