{"id":858,"date":"2016-04-01T17:47:07","date_gmt":"2016-04-01T17:47:07","guid":{"rendered":"https:\/\/scottysblog.com\/first-dose-of-carfilzomib\/"},"modified":"2016-04-01T17:47:07","modified_gmt":"2016-04-01T17:47:07","slug":"first-dose-of-carfilzomib","status":"publish","type":"post","link":"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/","title":{"rendered":"First dose of Carfilzomib&#8230;"},"content":{"rendered":"<p>Another classic Parkside lack of communication that drives you potty in what is, quite frankly, already a stressful enough day.<\/p>\n<p>Good job Mr H was with me, as we turned up at 10.30am and started upstairs in Ray&#39;s waiting room.<\/p>\n<p>Got sent straight down to the Chemo Lounge to have the canula put in, hate this bit as she chose the side of my wrist which I find the most painful bloody place to whack in the needle, once I&#39;d firstly sat with my arm in a long yellow bucket of hot water, feeling like I was fishing for tadpoles, to tempt any hidden veins out to play.<\/p>\n<p>Then back up to see Ray and clarify:<br \/>&#8211; the 4 week cycle for the new drug, Carfilzomib, supersedes the 3 week Revlimid cycle, so I now get 21 bloody nights of Revlimid with a 7 day break rather than the 14 days of Rev and 7 day break. More bloody boiling of Rev with kettles and syringes, ug.<br \/>&#8211; on the good side, my PP is now down again to 2.88 so hopefully I won&#39;t need more than 2 cycles of Carfil, if it works as we are hoping.<br \/>&#8211; And you can have just half a cycle, so just 1-2 weeks of the full 4, to knock my PP to zero, if it gets that low &#8211; we don&#39;t necessarily have to do a full 4 weeks (nice that there is a let out clause but still v confusing as to when the chemo bit will finish therefore..)<br \/>&#8211; on the crap side, he mentioned putting me on Maintenance treatment after the SCT, which would mean staying on some drugs, probably bloody Revlimid. Didn&#39;t have to take a single drug after first SCT so this feels a dreadful prospect, never an escape from the beast. <\/p>\n<p>H immediately launched into me having Hypnosis to cure my inability to swallow capsules as this is what causes the hassle. Swallowing one tablet with a quick slug of milk is fine, it&#39;s being held hostage to boiling water, filling syringes etc that causes the hassle. Cos those capsules are big motherfeckers&#8230;. <br \/>Anyone know a good hypnotist??!!<\/p>\n<p>Had an unexpected ECG, and was then weighed twice, once with a witness &#8211; bizarre &#8211; and had height checked. These weird &#39;extra bits&#39; you get used to and are what turn the &#39;give blood, see Ray, wait for results and have the drug&#39; sequence into usually about a 3-4 hour process.<\/p>\n<p>I was blood livid though when suddenly the poor nurse had to then tell me that before getting the Carfilzomib I had to have a 1 hour dose of sodium chloride fluids, then have the drug for 15 mins, then spend\/waste another bloody hour having a second bag of fluids. Lost my rag by this point as that meant being here from 10.30am to about 4pm. Just such a crap lack of communication as Liz T was on her way to meet us at the house for a catch up, which then had to be postponed, what a shame. Also buggered any chance of an afternoon snooze before we go out for a biggish dinner tonight. Poor dog was also waiting patiently in the car, for her run in the Common, all delayed and could so easily be avoided if someone just thought to explain the bloody process, grr.<\/p>\n<p><a class=\"asset-img-link\" href=\"http:\/\/scottysblog.typepad.com\/.a\/6a0105359a4116970b01b7c82cf3e8970b-pi\" style=\"float: left;\"><img decoding=\"async\" loading=\"lazy\" alt=\"Today\" class=\"asset  asset-image at-xid-6a0105359a4116970b01b7c82cf3e8970b img-responsive\" src=\"https:\/\/scottysblog.typepad.com\/.a\/6a0105359a4116970b01b7c82cf3e8970b-500wi\" style=\"margin: 0px 5px 5px 0px;\" title=\"Today\" \/><\/a><\/p>\n<p>Had one bag of fluid and about to be given an anti-sickness drug &#8211; also news to me &#8211; before I get the Carfilzomib. Then it&#39;s a quick pee before my bladder explodes tee hee, then I will get the second bag of fluid. If I get out by 4 I might have time to get home and then drive straight back with my car to have the check up with the shoulder consultant who took the shoulder biopsies, have an appt with him at 4.45om&#8230;.<\/p>\n<p>What a day&#8230;.. Is the bar open yet? X X<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Another classic Parkside lack of communication that drives you potty in what is, quite frankly, already a stressful enough day. Good job Mr H was with me, as we turned up at 10.30am and started upstairs in Ray&#39;s waiting room. Got sent straight down to the Chemo Lounge to have the canula put in, hate [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"nf_dc_page":"","om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-858","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>First dose of Carfilzomib... - Welcome to Scottys Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"First dose of Carfilzomib... - Welcome to Scottys Blog\" \/>\n<meta property=\"og:description\" content=\"Another classic Parkside lack of communication that drives you potty in what is, quite frankly, already a stressful enough day. Good job Mr H was with me, as we turned up at 10.30am and started upstairs in Ray&#039;s waiting room. Got sent straight down to the Chemo Lounge to have the canula put in, hate [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/\" \/>\n<meta property=\"og:site_name\" content=\"Welcome to Scottys Blog\" \/>\n<meta property=\"article:published_time\" content=\"2016-04-01T17:47:07+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/scottysblog.typepad.com\/.a\/6a0105359a4116970b01b7c82cf3e8970b-500wi\" \/>\n<meta name=\"author\" content=\"Scotty Hawkes\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Scotty Hawkes\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/first-dose-of-carfilzomib\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/first-dose-of-carfilzomib\\\/\"},\"author\":{\"name\":\"Scotty Hawkes\",\"@id\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/#\\\/schema\\\/person\\\/357bb657ac2d0982bd38d2258e558f5f\"},\"headline\":\"First dose of Carfilzomib&#8230;\",\"datePublished\":\"2016-04-01T17:47:07+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/first-dose-of-carfilzomib\\\/\"},\"wordCount\":658,\"commentCount\":0,\"image\":{\"@id\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/first-dose-of-carfilzomib\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/scottysblog.typepad.com\\\/.a\\\/6a0105359a4116970b01b7c82cf3e8970b-500wi\",\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/scottysblog.com\\\/home\\\/first-dose-of-carfilzomib\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/first-dose-of-carfilzomib\\\/\",\"url\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/first-dose-of-carfilzomib\\\/\",\"name\":\"First dose of Carfilzomib... - Welcome to Scottys Blog\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/first-dose-of-carfilzomib\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/first-dose-of-carfilzomib\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/scottysblog.typepad.com\\\/.a\\\/6a0105359a4116970b01b7c82cf3e8970b-500wi\",\"datePublished\":\"2016-04-01T17:47:07+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/#\\\/schema\\\/person\\\/357bb657ac2d0982bd38d2258e558f5f\"},\"breadcrumb\":{\"@id\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/first-dose-of-carfilzomib\\\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/scottysblog.com\\\/home\\\/first-dose-of-carfilzomib\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/first-dose-of-carfilzomib\\\/#primaryimage\",\"url\":\"https:\\\/\\\/scottysblog.typepad.com\\\/.a\\\/6a0105359a4116970b01b7c82cf3e8970b-500wi\",\"contentUrl\":\"https:\\\/\\\/scottysblog.typepad.com\\\/.a\\\/6a0105359a4116970b01b7c82cf3e8970b-500wi\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/first-dose-of-carfilzomib\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"First dose of Carfilzomib&#8230;\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/#website\",\"url\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/\",\"name\":\"Welcome to Scottys Blog\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/#\\\/schema\\\/person\\\/357bb657ac2d0982bd38d2258e558f5f\",\"name\":\"Scotty Hawkes\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/?s=96&d=mm&r=g\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/?s=96&d=mm&r=g\",\"caption\":\"Scotty Hawkes\"},\"url\":\"https:\\\/\\\/scottysblog.com\\\/home\\\/author\\\/scotty-hawkes\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"First dose of Carfilzomib... - Welcome to Scottys Blog","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/","og_locale":"en_US","og_type":"article","og_title":"First dose of Carfilzomib... - Welcome to Scottys Blog","og_description":"Another classic Parkside lack of communication that drives you potty in what is, quite frankly, already a stressful enough day. Good job Mr H was with me, as we turned up at 10.30am and started upstairs in Ray&#39;s waiting room. Got sent straight down to the Chemo Lounge to have the canula put in, hate [&hellip;]","og_url":"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/","og_site_name":"Welcome to Scottys Blog","article_published_time":"2016-04-01T17:47:07+00:00","og_image":[{"url":"https:\/\/scottysblog.typepad.com\/.a\/6a0105359a4116970b01b7c82cf3e8970b-500wi","type":"","width":"","height":""}],"author":"Scotty Hawkes","twitter_card":"summary_large_image","twitter_misc":{"Written by":"Scotty Hawkes","Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/#article","isPartOf":{"@id":"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/"},"author":{"name":"Scotty Hawkes","@id":"https:\/\/scottysblog.com\/home\/#\/schema\/person\/357bb657ac2d0982bd38d2258e558f5f"},"headline":"First dose of Carfilzomib&#8230;","datePublished":"2016-04-01T17:47:07+00:00","mainEntityOfPage":{"@id":"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/"},"wordCount":658,"commentCount":0,"image":{"@id":"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/#primaryimage"},"thumbnailUrl":"https:\/\/scottysblog.typepad.com\/.a\/6a0105359a4116970b01b7c82cf3e8970b-500wi","inLanguage":"en-US","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/","url":"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/","name":"First dose of Carfilzomib... - Welcome to Scottys Blog","isPartOf":{"@id":"https:\/\/scottysblog.com\/home\/#website"},"primaryImageOfPage":{"@id":"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/#primaryimage"},"image":{"@id":"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/#primaryimage"},"thumbnailUrl":"https:\/\/scottysblog.typepad.com\/.a\/6a0105359a4116970b01b7c82cf3e8970b-500wi","datePublished":"2016-04-01T17:47:07+00:00","author":{"@id":"https:\/\/scottysblog.com\/home\/#\/schema\/person\/357bb657ac2d0982bd38d2258e558f5f"},"breadcrumb":{"@id":"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/#primaryimage","url":"https:\/\/scottysblog.typepad.com\/.a\/6a0105359a4116970b01b7c82cf3e8970b-500wi","contentUrl":"https:\/\/scottysblog.typepad.com\/.a\/6a0105359a4116970b01b7c82cf3e8970b-500wi"},{"@type":"BreadcrumbList","@id":"https:\/\/scottysblog.com\/home\/first-dose-of-carfilzomib\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/scottysblog.com\/home\/"},{"@type":"ListItem","position":2,"name":"First dose of Carfilzomib&#8230;"}]},{"@type":"WebSite","@id":"https:\/\/scottysblog.com\/home\/#website","url":"https:\/\/scottysblog.com\/home\/","name":"Welcome to Scottys Blog","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/scottysblog.com\/home\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Person","@id":"https:\/\/scottysblog.com\/home\/#\/schema\/person\/357bb657ac2d0982bd38d2258e558f5f","name":"Scotty Hawkes","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/secure.gravatar.com\/avatar\/?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/?s=96&d=mm&r=g","caption":"Scotty Hawkes"},"url":"https:\/\/scottysblog.com\/home\/author\/scotty-hawkes\/"}]}},"jetpack_featured_media_url":"","_links":{"self":[{"href":"https:\/\/scottysblog.com\/home\/wp-json\/wp\/v2\/posts\/858","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/scottysblog.com\/home\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/scottysblog.com\/home\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/scottysblog.com\/home\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/scottysblog.com\/home\/wp-json\/wp\/v2\/comments?post=858"}],"version-history":[{"count":0,"href":"https:\/\/scottysblog.com\/home\/wp-json\/wp\/v2\/posts\/858\/revisions"}],"wp:attachment":[{"href":"https:\/\/scottysblog.com\/home\/wp-json\/wp\/v2\/media?parent=858"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/scottysblog.com\/home\/wp-json\/wp\/v2\/categories?post=858"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/scottysblog.com\/home\/wp-json\/wp\/v2\/tags?post=858"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}