The calm before the (shit)storm…….
\nHaving been off treatment for a couple of weeks now I feel SO much better. Went to what we call the Secret Carpark in Richmond Park yesterday and managed the longest walk I have done in months, with H, our mate Jules and the dog beast. Probably about a mile, which in my book pretty much matches the marathon.
\nQuite weird to feel half decent for once and the only thing I can put it down to, is being off the drugs. Just a bloody shame that it all kicks off again tomorrow.
\nSo I think I'm now going back onto the chemo cocktail that I started on, Velcade and bloody Revlimid. Still no sign of the new drug arriving from the US so I'll find out more tomorrow about what they have planned for me, and what that means for forward dates and timings. As you can I hide, having no control or visibility over the coming months is not a fun place to be.
\nIn the meantime, I'm on the sofa with the hound, contemplating exploring the choc cupboard as I'm sure I saw a small bar of Dairy Milk in there that needs a home..
\nAnd this week is all about whether I'm going to be able to go on hockey tour this coming weekend. Two nights, with the Aces, in Sevenoaks at a festival that I bust a gut to get the team invited to. Something I'd usually embrace and be plotting various drinking games for, but this year I have no idea quite how it'll be. At the moment I'm weirdly off booze as my tastebuds just aren't interested – a total shocker. And not ideal for a hockey tour! Plus if Revlimid is my destiny I'll have to find a way to get back to the hotel and boil that fucking capsule into liquid each day…. Or, maybe just not take it. Yes, heresy I know.
\nWill know more once I've had chemo this week and have brought home the giant paper sack of drugs – what a party bag that ain't.
\nKeep your fingers crossed that just this once I might actually be able to do do something that's in my diary. Off to power up my chances with the choc bar now…. S x<\/p>\n","protected":false},"excerpt":{"rendered":"
The calm before the (shit)storm……. Having been off treatment for a couple of weeks now I feel SO much better. Went to what we call the Secret Carpark in Richmond Park yesterday and managed the longest walk I have done in months, with H, our mate Jules and the dog beast. Probably about a mile, […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"nf_dc_page":"","om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-843","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"\n