{"id":427,"date":"2019-07-23T10:52:41","date_gmt":"2019-07-23T10:52:41","guid":{"rendered":"https:\/\/scottysblog.com\/couples-chemo-and-all-that\/"},"modified":"2019-07-23T10:52:41","modified_gmt":"2019-07-23T10:52:41","slug":"couples-chemo-and-all-that","status":"publish","type":"post","link":"https:\/\/scottysblog.com\/home\/couples-chemo-and-all-that\/","title":{"rendered":"Couples Chemo and all that.."},"content":{"rendered":"<p>So, thought it might be time for a mini update, not that there&#39;s anything terribly thrilling to say.<\/p>\n<p>Hawksey had his last of his 6 chemo treatments yesterday, so that&#39;s a good landmark to have got to. Now he&#39;ll have a week or so of losing his sense of taste, feeling a bit tired and &#39;off&#39; and then hopefully back onto good form for next Tuesday.<\/p>\n<p>We are heading off on the train then to Penzance with Scrumpy dog, and then on the boat over to the Scilly Isles the next day for a week of island hopping, chilling out, pootling about on a couple of different boats, eating seafood and &#8211; I&#39;m so excited so I hope this works out well &#8211; snorkelling with seals. Can you imagine??!!! Underwater camera is poised for action, just hope the seals are too.<\/p>\n<p>He&#39;s glad to be at the end of this bit of the treatment, and somehow didn&#39;t lose his hair although it has turned rather white in the process, one of the many strange wonders of different chemotherapy treatments. We aren&#39;t seeing his consultant till the end of August, just prior to him starting his 2 months of daily radiotherapy in September, so there won&#39;t be any concrete news on what the chemo has done till at least then.<\/p>\n<p>I&#39;m sitting at CCL now, hence updating the blog. Waiting for my never ending bloody Dara IV infusion &#8211; today we are in a side room as the main room is too hot for the drugs to be used in, we were kept waiting 20 mins in Reception while they were jiggling the chairs round, they can&#39;t seem to find Prof who needs to sign off the treatment and I want to be away on time. Not looking good, but pretty much par for the course.<\/p>\n<p>But am pretty healthy &#8211; I think, Am just being booked in for my 6 monthly Bone Marrow Biopsy (joy) and PET CT scan, which together determine if I am still in remission (or MRD &#8211; minimal residual disease, as its charmingly called). So always a bit of a scary time as life changes horribly when the numbers do. won&#39;t know till Aug.<\/p>\n<p>Only bollock is my back which is still rather sore since it went wrong again last month, and I move like a 70 year old. Which might be an injustice to any sprightly 70 year old. But hey, am still alive.<\/p>\n<p>I watched a rather sobering programme yesterday called War in the Blood, which was screened a week or two ago. About CAR-T cell treatment being used for blood cancers, in this case on two men, one a teenager and one a middle aged man, both with leukaemia. Interesting to see as it&#39;s something that might be relevant for Myeloma one day. But tough to watch &#8211; both of them were very ill once they had been given the cells, and it was just like my experience with both stem cell transplants. Brings it all back as it&#39;s never really something you could ever forget, and I absolutely dread the prospect of having to have another one some day.&#0160;<\/p>\n<p>Worth viewing if you&#39;re interested, it&#39;s probably on catch up. Have a tissue standing by. x&#0160;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>So, thought it might be time for a mini update, not that there&#39;s anything terribly thrilling to say. Hawksey had his last of his 6 chemo treatments yesterday, so that&#39;s a good landmark to have got to. 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