{"id":1058,"date":"2014-01-11T11:03:50","date_gmt":"2014-01-11T11:03:50","guid":{"rendered":"https:\/\/scottysblog.com\/myeloma-meet-up\/"},"modified":"2014-01-11T11:03:50","modified_gmt":"2014-01-11T11:03:50","slug":"myeloma-meet-up","status":"publish","type":"post","link":"https:\/\/scottysblog.com\/home\/myeloma-meet-up\/","title":{"rendered":"Myeloma Meet Up"},"content":{"rendered":"<p>So &#8211; decided that I would indeed go and join the proposed meeting-up of a bunch of the newer joiners to my Under 50&#39;s Myeloma forum. I&#39;d acutally suggested they meet at the Slug in Waterloo (easy for me!) and they chose it, so thought it might be rude not to.<\/p>\n<p>Thank god one of the &#39;old crowd&#39; was there &#8211; Phil Kelly, who together with me set up the Under 50s forum 5 years ago now. Good to see him and at least he swears as much as I do &#8211; the rest seemed to still be on best behaviour (something the original group got over remarkably fast as we bonded like glue).<\/p>\n<p>We were 8 in total, more than I had thought as it was a spontaneous thing driven by one of them going for a 2nd opinion at King&#39;s and various others then deciding to come out of the myeloma closet for the night and hook up. A bizarre mixture of people sharing &#39;normal life&#39; stuff &#8211; jobs, where you live, funny stories &#8211; interspersersed with viewpoints on how long to wait for anaesthetic to kick in before having a Bone Marrow Biopsy, who the best specialists are and different drug regimens to cope with varable circumstances&#8230;<\/p>\n<p>Also a bit (more than, really..) sad for Phil &amp; I that we are no longer with the original folks that we met 5 years back. Only 1 other is still alive &#8211; Sandra &#8211; and it felt like we were almost replacing them with the new group.. Which we&#39;re obviously&#0160;not, but it did make us stop and think &#8211; even more than we both do, all the time.<\/p>\n<p>Anyway, overall a positive when it could have been a whopping downer, so worth tipping up to.<\/p>\n<p>And then headed back for dinner with Mum &amp; Cathy &#8211; just&#0160;flown in&#0160;from Xmas in Holland and ready to experience a roast chicken with &#39;cauliflower mash&#39; instead of roasties. Sigh &#8211; but we need to de-lard, so cauliflower, you are our new best friend.<\/p>\n<p>Much love and thoughts to all the Myeloma guys, past and present x<\/p>\n<p>&#0160;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>So &#8211; decided that I would indeed go and join the proposed meeting-up of a bunch of the newer joiners to my Under 50&#39;s Myeloma forum. 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