Uncategorized
-
Morning All
Now this is the kind of day I like to wake up to – no work and plenty of social stuff to sate my love for my chums: i) A nice walk on Wimbledon Common with the lovely Mr Tony Franco at 9am ii) Tea with my Myeloma chum Neil at 11am (my we're a cheery…
-
Good Little Paraprotein
It's quite odd, going back to work and starting ever so slowly to slip back into the old habits, then just as you're starting to get used to being back in the swing of work and everything that entails… having to go back to the hospital for another day of tests and checkups. Its like…
-
So Well I Have to Go Back to Work..
So then, saw Prof again this week – and the paraprotein was still 5. Which is good. Well, zero and complete remission would have been better, but as he keeps trying to remind me, 'PR' (partial remission') can also be a good thing providing the paraprotein stays stable and the disease is therefore 'switched off'…
-
Keeping busy
Helloo you mad blog readers, quiet day in the office or just feeling a but bored/pissed off/curious so tuning in for a quickie, as they say? Bit of a frustrating period of in-between-ness going on. Still on the road to getting back to 'normal' (if only this were really ever possible again) in terms of…
-
Learning to Go Out Again
Its very odd – I feel like some sort of victim of a road crash or a mini stroke where you have to re-learn your behaviours again, as I now have to get back into the habit of this thing called 'popping out of the house'. It's got ever so cozy hanging out here –…
-
Feeling Better Every Day
Hey Campers, Greetings from Stroud Road, a whole 2 weeks since being released from Parkside (or the 'Dark Side') as I heard a nurse from a rival hospital call it yeterday, nice… Things going well here – I feel much better and people dropping in seem to think I look a whole lot better too…
-
Home Sweet Home
Aaah.. have been out of hosp for a week now and its flown by – but is still SOOOOOoooooo good to be back home, laying out on my own bed and sofa than being in Parkside Paradise. I have now perfected the fine art of turning 40 winks sleep into 400 winks – can now do full 5…
-
The Scotty Oscars!
It struck me while in Parkside Prison that there was something about everyone who kindly popped in to see me, that stuck in my head about their visit…. So in the spirit of sharing the love, I'd like to introduce you to my mental awards for each of your talents, amusement factors, oddities, foibles and visiting skills…
-
Stem Cell Transplant: Day By Day Update..
Mon 12th Jan: Pretty easy day, they like to break you in gently. Saw Prof for final chat & consent form signing, bloods etc, then over to the main hospital to be admitted. Greased the sweaty palm of the financial dragon in her box with Pru Health's details and settled into my lavender cell on…
-
THE STEM CELL HARVEST: 5, 6, 7 JAN – RESULTS
Well, it went pretty well. Was hoping for – get this – two million stem cells per kilo of my weight. Which is one heck of a lot of stem cells I can tell you. After 3 days of being attached to the magic machine for 4-5 hours per day, I got enough for this transplant…